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Jacket of hope: Empowering young cancer patients

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When Oliver Burkhardt underwent leukemia therapy on the age 9, he’d enter the hospital sporting his patch-covered denim jacket. Pokemon. Superman. NASA. Police, hearth, navy. Classic rock bands. About 50 patches have been sewn on by his dad and mom, chosen from 1000’s despatched by well-wishers worldwide after his dad made a social media request.

The jacket turned Oliver’s swimsuit of armor, deflecting his illness – and the nasty unwanted side effects of his therapy. It sparked conversations with nurses. His dad and mom embellished their very own jackets, exhibiting they have been a staff. The patches made Oliver really feel particular.

“I knew individuals have been looking for me; they gave me optimistic vibes that folks liked me,” stated Oliver, now 13 and in remission.

Seeing how the jacket and its patches helped Oliver, he and his dad and mom, Brian Burkhardt and Trisha Brookbank, thought different children battling most cancers would possibly like one, too. The couple, who come from artwork backgrounds, reached out to their designer associates and, inside a day, acquired 300 renderings for potential patches.

The Oliver Patch Project was born.

Three years after launching, the charity has supplied greater than 1,600 kids from infancy to 19 years with a free denim jacket or tote bag. They are adorned with 20 patches chosen by the kid or dad and mom from this system’s web site, after which every month, they obtain one other patch within the mail.

On a latest afternoon on the charity’s workplace west of Miami, a dozen containers containing a jacket or tote awaited pickup, heading to houses in such cities as Corpus Christi, Texas; Eagle Mountain, Utah; and Murietta, California. Children with most cancers from all 50 states have joined.

“This program is 100% about empowering the kids and making them feel like they belong to a much bigger community, that they are not alone,” said Brian, a former creative director who now runs the charity full-time. “It’s not likely concerning the patch; it is about belonging.”

Parents additionally obtain a field of 13 milestone patches to reward their youngster whereas they’re present process widespread most cancers therapy or experiencing a aspect impact. A gorilla for beginning chemo. A bald eagle for hair loss. A polar bear for fever. They assist alleviate a few of the trauma because the youngster works towards the “I Rang the Bell” patch for finishing a spherical of therapy.

So they do not really feel uncared for, siblings additionally get particular patches – one thing Oliver’s dad and mom realized was essential from his youthful brother, Peter.

“Everything sort of shifts all of your consideration to being on the kid who’s sick,” stated their mother, the chief monetary officer at her household’s inside design agency.

The most cancers program is proscribed to the U.S., however the charity lately acquired funding to ship patches to sick kids taking part in experimental drug trials within the U.S. and 18 different nations.

The charity’s roots started in 2020, shortly after Oliver was identified. He struggled with chemotherapy, and his dad wished to search out one thing that may bolster his spirits and present he had help.

“He was very drained and never feeling effectively,” Brian stated.

One day, he seen patches he’d tossed into his desk drawer. Oliver would possibly like getting some within the mail, he thought, and the household’s associates may nonetheless do it throughout the COVID-19 lockdown.

“It’s a straightforward ask. They can drop a patch in an envelope, and, in return, it provides Oliver one thing to look ahead to. Checking the mail each day would get him off the couch,” Brian stated.

He posted his request on Facebook. Friends shared it.

The first patch quickly arrived: a kangaroo. A trickle turned a torrent – 2,000 arrived that month, 70% from strangers.

“I used to be like, ‘Wow, this is all for me?’ I was genuinely super surprised,” Oliver said. “They were all different colors and they all had nice notes, like ‘Hope you feel better.’” His dad and mom sewed some onto the household’s jackets whereas sitting in his hospital room.

After getting the concept of supporting different kids, Brian enlisted assist. Men’s clothier Perry Ellis donates jackets and tote luggage. Foundations and donors present funding. The charity employed a patch producer and a seamstress. The charity spends about $350 per youngster.

As the Oliver Patch Project grew, phrase unfold to kids’s hospitals, parental help teams and Ronald McDonald Houses, the place households generally dwell throughout therapy. About 30 kids per week now enroll.

Dr. Maggie Fader, an oncologist at Miami’s Nicklaus Children’s Hospital, the place Oliver was handled, stated boosting a sick youngster’s morale makes restoration simpler.

“If patients start to become depressed or negative about the way things are going, they also start to be less cooperative,” Fader said. “We can provide them medicines. We can administer IV fluids, we can provide them chemotherapy, however we will’t make them eat. We can’t give them good diet. We can’t make them adjust to all their oral medicines after they’re dwelling. Those are issues the place they should be prepared and taking part.”

Ellora Hendrickson, a 7-year-old from North Smithfield, Rhode Island, embellished her jacket with patches like a ballerina as a result of she takes dance classes and an avocado, a favourite meals. Diagnosed with kidney most cancers final yr, she underwent surgical procedure, radiation and chemo earlier than receiving her bell ringer patch in February.

“The patches are actually particular to me as a result of they helped my journey by way of most cancers,” she stated.

Her mother, Ashley Hendrickson, discovered of this system by way of social media from one other guardian whose youngster has most cancers.

“It was really nice to be able to have something fun to associate with these kind of otherwise fairly scary milestones,” said Hendrickson, a pharmacist. “The dichotomy of one thing so heavy being related to one thing as joyful and childlike because the patches will not be misplaced on me.”

Becky McHardy of Norwalk, Connecticut, stated although her daughter Millie is just 3, she enjoys taking part in together with her patches. Millie is recovering from an belly tumor – she’s had surgical procedure and is seven months right into a 10-month chemotherapy routine.

“Every time she does something that’s hard, whether it’s chemo, a transfusion or whatever it is, she gets a new patch. I sew those onto her jacket and she loves that,” McHardy stated.

Oliver stated realizing {that a} venture born from his sickness helps different kids “is superb.” He generally travels to satisfy venture recipients, like at a latest occasion hosted by the Nasdaq Stock Market in New York City. The change posted the youngsters’ image on its Times Square video board.

“It makes me really feel nice that I’m in a position to speak to different children like me, share what that is all about and hopefully assist extra,” he stated.

Source: www.dailysabah.com

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